tag:blogger.com,1999:blog-4079066796386182376.post7580992584771608090..comments2023-10-08T09:48:09.835+02:00Comments on Home Worked: Look Me in the EyesUnknownnoreply@blogger.comBlogger7125tag:blogger.com,1999:blog-4079066796386182376.post-39985280710392513242007-07-31T16:41:00.000+02:002007-07-31T16:41:00.000+02:00hi maryilee -- thanks for visiting my site, and fo...hi maryilee -- thanks for visiting my site, and for the information. HS is not really a known condition that's why it could be misdiagnosed. the problem with HS is that there are at least 2 or 3 diseases that could really trigger the spleen's breakdown -- my niece who has HS almost needed a blood transfusion when she was down with a flu and cold; good thing her blood tests stabilized before it could come to that; but she was really, really weak!raqgoldhttps://www.blogger.com/profile/09483100839729445236noreply@blogger.comtag:blogger.com,1999:blog-4079066796386182376.post-90548351771237195692007-07-31T03:24:00.000+02:002007-07-31T03:24:00.000+02:00Hi, I know quite a bit about HS as I have it as do...Hi, I know quite a bit about HS as I have it as do all three of my children. It really hasn't been all that big of a deal around here. I was sick as a kid, but they treated it as iron deficiency and didn't properly diagnose me until I was 10, at which point, I had a splenectomy.<BR/><BR/>My first child always looked pale and I asked his doctor about the possibility of him having it too, but the doctor just laughed at me! Well, he was completely wrong as my son became pretty ill when he was three, and then had a splenectomy at age 5. Prior to that we were told no contact sports for him, but he was so young, we hadn't even thought about that.<BR/><BR/>He is now 21 and in the U.S. Air Force, so it didn't hinder him in any way. <BR/><BR/>My next son, who was the picture of health, shocked me by also being diagnosed at the same time as his brother since they tested all of us. He played American football and baseball without any problems and all with the okay of his hematologist. His case is rather mild, but he did get really sick when he was ten. He is 19 now and fine. He played football all the way until he was 14. (quit for unrelated reasons).<BR/><BR/>My daughter is almost seven and other than a couple of mild cases of anemia, has been healthy. She runs, plays, etc and I don't give much thought to it.Anonymoushttps://www.blogger.com/profile/13267066733031149882noreply@blogger.comtag:blogger.com,1999:blog-4079066796386182376.post-11408973879348080412007-07-18T09:58:00.000+02:002007-07-18T09:58:00.000+02:00momoftwo - when you discover some info abt HS, you...momoftwo - when you discover some info abt HS, you might just want to share them with me! this is really not a well known condition e. thanks!<BR/><BR/>hi julie -- when we fly to manila, i would find all of you, hahaha!!<BR/><BR/>schrooch -- i agree with you there. we always want the best for our kids, and why not, they deserve it!raqgoldhttps://www.blogger.com/profile/09483100839729445236noreply@blogger.comtag:blogger.com,1999:blog-4079066796386182376.post-66760741474353586942007-07-18T08:37:00.000+02:002007-07-18T08:37:00.000+02:00Hi Racquel!! I can understand how frustrating it ...Hi Racquel!! I can understand how frustrating it can be. And as parents we really have no choice but to find the best ways for our kids to live and enjoy themselves. It's sad that ignorance can sometimes put a damper on our happiness. Not our own ignorance, mind you, but those around us. As for our roles, I think it's a never-ending search for whatever is best for our children :)ScroochChronicleshttps://www.blogger.com/profile/08236174046250105313noreply@blogger.comtag:blogger.com,1999:blog-4079066796386182376.post-3390173298423812022007-07-18T01:45:00.000+02:002007-07-18T01:45:00.000+02:00This must be very hard for you and your family Raq...This must be very hard for you and your family Raq. I hope and pray everything would be fine. And if you are coming to the Philippines, where would I find you? :DAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4079066796386182376.post-51645682399734443282007-07-18T01:28:00.000+02:002007-07-18T01:28:00.000+02:00the way I explain it to folks is that my red blood...the way I explain it to folks is that my red blood cells are shaped like american footballs or rugby balls instead of nice donut shape. (donuts being popular in America lol). So normal red blood cells live about 160 days. Folks with HS theirs live about 60-120. Now the spleen has a lovely Wave shaped vein/artery going through it and it helps screen all your abnormal cells and take out dead ones and abnormal ones such as dead platelets etc. Now when it comes accross the spherical shaped red blood cell of a person with HS it gobbles it up and of course since so many of red blood cells are shaped wrong it keeps taking them and spleen gets enlarged. Also what happens is because your blood is getting killed off early u risk become anemic. And with all the excess red blood cells dying you also have higher bilirubin levels so can look jaundiced as the liver works overtime to get rid of the excess dead matter kicked out by the spleen. Treatment nowdays is folic acid for kids and they try and avoid taking out spleen if they can. However in a lot of cases they do take out spleen but try and wait till kid is at least 5/6 yrs old as rest of body can then take over function of spleen which is quite important in beating off flus and pneumonias. Its very undiagnosed in Europe even though they think 1 in 5000 people have it. Runs in families and you have 50% chance of getting it from a parent as its autosominal dominant. Its annoying but treatable and even if spleen gets taken out it can be managed with flu shots etc yearly. Hardest thing for me as a kid was trying to understand why I couldnt go to play at hospital and I had to stay in bed. I became an avid reader because I spent so much time reading comic books. Know you're not alone and theres a lot of information out there. Any decent haemtologist knows about it but dont be surprised if you have to educate general doctors as I do all the time.Diary of an Irish Womanhttps://www.blogger.com/profile/09095610664443934266noreply@blogger.comtag:blogger.com,1999:blog-4079066796386182376.post-84154174051515352922007-07-17T22:29:00.000+02:002007-07-17T22:29:00.000+02:00Hi there! First, thanks for your visit :)I have to...Hi there! First, thanks for your visit :)<BR/><BR/>I have to google HS becoz it sounds foreign to me also. Kakatapos lang namin lecture sa mga conditions sa dugo in Pediatrics Nursing so talagang this is something new. <BR/><BR/>If I'm in your shoes siguro I will do the same, walang katapusang research gagawin ko. Heck, anak ko nga nag ka cradle cap lang parang di na ako makatulog. I think it's just normal to us (moms alike) to do such thing.Anonymousnoreply@blogger.com